Are you a child neurologist, a physician, a geneticist, a screening centre manager and you wish to support the development of SMA screening in your country?
Join us and discover “Before SMA: The Academy !”
What is it?
Two full days interactive training and discussion including:
- role play around diagnosis announcement,
- plenary lectures
- round table discussions...
- and, above all, a constant exchange of ideas
Everything you wanted to know about SMA NBS, but you were afraid to ask.
Where? Liège, Belgium. Where SMA NBS is implemented since March 2018.
For who? Child neurologists, newborn screeners, geneticists, care/program coordinators... As long as you are/will be/would like to be leading of involved in a SMA NBS program, and have several questions.
When ? 2 sessions have already taken place in May and November 2022 and the new edition will be held on 1 and 2 June 2024
Is it F2F or online? We started off with a mixed session, but realised that face-to-face was a much better way of exchanging ideas. Our new sessions are therefore entirely face-to-face.
How much does it cost?
- 50€ all included. Residual cost, including housing, travel (up to 600€), inscription... Is covered by grants provided by our generous sponsors.
Previous editions have been funded by :
And the new edition is funded by :
Who are the organisers and the speakers?
Organised by Pr Laurent Servais, the previous editions have been able to count on:
- Pr Richard Finkel, St. Jude Children's Research Hospital, US,
- Dr Crystal Proud, Children’s Hospital of the King’s Daughters, US,
- Dr Asbjorg Stray-Pedersen, Oslo University Hospital, Norway,
- Dr Emma Ciafaloni, Rocherster Medical Center, US,
- Dr Francois Boemer, CHU Liege, Belgium,
- Dr Monika Gos, Institute of Mother and Child, Warsaw, Poland,
- Pr Jan Kirschner, Bonn Université de Bonn, Germany,
- Pr Francesco Muntoni, UCL, London, UK,
- Dr Tamara Dangouloff, University of Liège, Belgium.
- Pr Mickael Hiligsmann, University of Maastricht, The Netherlands
- Pr Jan Kirschner, University of Bonn, Germany
- Pr Francesco Muntoni, UCL, London, UK
- Dr Danilo Tiziano, University of Roma, Italy
The new edition will be with:
- Dr Danilo Tiziano, University of Roma, Italy
- Dr Renske Wadman, University of Utrecht, Netherlands
- Dr Liesbeth De Waele, University of Leuven, Belgium
- Dr Tamara Dangouloff, University of Liège, Belgium.
How can I register?
Registre on-line before the 02 of April 2024.
Limited number of participants
We hope being able to accommodate all requests, but should we not be able, we will prioritise the most diverse audience in terms of origin, specialisation...This will give us a strong incentive to organise a next session.
